Online Fundraising

 Who We Help 


Muscular Dystrophy is a devastating neuromuscular disorder which weakens and wastes the muscles. The most common form is Duchenne Muscular Dystrophy which mainly affects boys. Onset of this condition is between 3 and 5 years of age and the disorder progresses rapidly with most boys completely dependent on an electric wheelchair by their early teens. Life expectancy for this disorder is usually into their early thirties. There is no treatment, there is no cure and no-one survives.


At Muscular Dystrophy NSW we help build strength and reach potential through providing the tools to empower, connect and support those affected by a neuromuscular condition and by being an advocate for the neuromuscular community in NSW.


Muscular Dystrophy NSW provides critical life-changing support and assistance to those affected by a neuromuscular condition to help them live longer, more fulfilled lives. It aims to satisfy the unmet needs of as many of these people as possible through the provision of:


  • Children’s camps, Youth short stay and Adult respite programs

  • Critical equipment for medical, accessibility and communication needs

  • Access to sport and special interest programs

  • Our innovative world-first Duke of Edinburgh's Award Program


The funds you raise during sacrificing Sugar during September will allow us to make these programs happen. Thank you, we couldn’t do any of this without you! Please checkout Joshua’s story below to learn more about how you help by clicking here.