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 Who We Help 

Muscular Dystrophy is a devastating neuromuscular disorder which weakens and wastes the muscles.  The most common form is Duchenne Muscular Dystrophy which mainly affects boys.  Onset of this condition is between 3 and 5 years of age and the disorder progresses rapidly with most boys completely dependent on an electric wheelchair by their early teens. Life expectancy for this disorder is usually only early twenties. There is no treatment, there is no cure and no boy survives.

 

Muscular Dystrophy NSW’s (MDNSW) goal is to improve the quality of life for all people affected by Muscular Dystrophy.

 

Funds raised support the MDNSW Kids for Life Program

At Muscular Dystrophy NSW we believe that every young person deserves the chance to live to their full potential.  The Kids for Life Program provides critical life-changing support and assistance to young people living with Muscular Dystrophy to help them live longer, more fulfilled lives.  It aims to satisfy the unmet needs of as many of these young people as possible through the provision of:

  • Children’s camps and respite programs

  • Critical equipment for medical, accessibility and communication needs

  • Access to sport and special interest programs

  • Our innovative world-first Duke of Edinburgh's Award Program

  • Counselling and health therapies

For more information visit www.mdnsw.org.au